ALS Awareness Month: resources for caregivers

Amyotrophic lateral sclerosis, better known as ALS, is a fatal neuromuscular degenerative disease that typically affects people aged 45 to 75. It attacks motor neurons and the spinal cord, progressively causing paralysis. May is ALS Awareness Month and a great opportunity to discover sources of support for the people who take care of ALS patients.

There’s help
Typically, the brunt of caring for ALS patients and the costs of managing their symptoms are assumed by the people close to them. In addition to the emotional difficulty of caring for someone affected by this disease, the financial burden can be devastating. This is because ALS patients require adapted transportation, modified homes, and constant care. Fortunately, there’s help. The ALS Association, as well as various state-level organizations, can provide:

• Information

• Courses for caregivers

• Support groups

• Psychosocial support services

• Access to grants

• Other financial help

If you’d like to help people with ALS and their caregivers, you can take part in various fundraising events, volunteer or make a donation. Since ALS progresses quickly and often kills within five years, investing in research is paramount. To learn more, visit alsa.org.

Tax credits to cover some of the costs of modifying your home may be available, depending on your situation. Speak with a tax professional to learn more.